Consent Template to Support Indigenous Data Sovereignty

The PCGL and the Silent Genomes Project Indigenous Background Variant Library (IBVL) have partnered to provide Indigenous individuals and communities participating in research with the option to have their data held under Indigenous protection, governance, and oversight. Together, they developed a Consent Template to Support Indigenous Data Sovereignty that is now available for use by the Canadian Precision Health Initiative (CPHI) projects, as well as any other research projects planning to submit data to the PCGL.

View & download the current version of the Consent Template to Support Indigenous Data Sovereignty below: